I went to see my doctor and at least have a little (tiny) bit of optimism about it afterwards

If you follow the adventures of the Curse Avoider (the name is ironic), you know that I had a GP appointment today. I got the recommendation to the other hospital and they'll probably call me later this week or the next to make an appointment.

She took it seriously at least. I think I really need to easily convey just how disabling these symptoms are for me because they see me in front of them and think it's not that bad. When I mentioned that I try not to take long drives (e.g. to the other hospital) because I could have an episode behind the wheel and what do I do if I'm on the highway, she seemed to understand that something needs to be done.

I asked about a certificate also, mentioning that the hema didn't want to make me one and couldn't explain, and she said (they're both women fyi if the pronouns are messing up with your sequence of events, all my doctors are women actually) that they need to exhaust all medical possibilities first before doing that and then determining just how out of work this puts me. I said yeah that's fine, if it's the process it's the process. I just need them to take this seriously and understand that this is where I'm at, and I need their help on this. I'm the patient and every doctor tells me a PE is serious but I feel like nobody takes it seriously and I have to come up with my own treatment plan.

Anyway, I got the recommendation for the other hospital and hopefully move my case there because I can't with this shitty useless local hospital lol. I'm not expecting a miracle solution even though my family is because I think we've done all the tests and even if we knew the cause what would it change? I'm still at risk for clotting. Unless we can tell for sure this was caused by my 2021 covid vaccine or something (they pulled the moderna one because of this btw, but it happens in the first few weeks).

So that's the next step, is seeing a doctor at that hospital and seeing what they say. I basically have three options:

1. Keep taking the NOAC (that's your word of the day again from last thread, these are the new blood thinners that don't require any monitoring) but become disabled. This is what I'm doing rn.
2. Stop taking the blood thinners entirely, but no doctor recommends that -- not the hema and not my GP today. It goes contrary to my diagnosis which is unprovoked pulmonary embolism.
3. Go on the older thinners but they also come with their own issues (frequent monitoring, being careful about what you eat, and it's an all or nothing thinner so higher propensity for hemorrhages and difficulty to stop bleeding). This may be what the hospital recommends, I'll only know when I see them.

She also gave me some medication to help manage the symptoms, but it's not stuff you can take long-term, more like until I visit the hospital. I also have to try it and see if it helps, so I said okay sure.

If I'm disabled I'm disabled, I accept it. And if they figure they can safely do the older thinners then that's what it is, I accept it as well. I think. But I need solutions, I need them to follow through and not stick me in limbo where I have to call back in "a month" when they haven't changed anything and I've been having these issues for over 9 months lmao.

Solidarity to all my comrades. It's tough out there.