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My day started fine and then got worse, but according to my hematologist I'm supposed to wait 1 month to see if it improves or something LMAO

I'm seeing my GP (not actually in the UK, GP is just the word I learned) tomorrow and I hope she has better news. I'm not holding my breath because she doesn't know anything about pulmonary embolisms and always defers to the hematologist's advice. If she doesn't have anything to offer me at the very least I hope I can get a referral for the new hospital.

If you followed my last posts, last Thursday I went to see my hematologist and basically came out of it being ran in circles and with no clearer plan in mind. She said at the end "let me know in a month or so how it goes" how what goes?? She didn't say. I've had these episodes for 9 months now it's not gonna suddenly change lmao that's the definition of insanity, doing the same thing and expecting a different result. She basically politely threw me out of her office when I asked for a certificate. So I decided after that to get my case transferred to another hospital where they can hopefully be more available (she only works two days a week come on) and offer actual treatment options. And if my GP is just as useless I'll have to find another one that has experience with PEs. Which is absolutely not something I want to do because at this time anything is difficult to do and I really could do with less effort on my end. But that's how it is when you get sick in capitalism, you not only have to deal with the illness but you get punished for it. Complete strangers on the streets have been more helpful and understanding of my struggles than actual doctors.

I'm not one to usually get mad at other people but maybe I should. Maybe I should admit that she's utterly useless and can't do her job properly when you have a 30yo otherwise healthy patient who suddenly develops several embolisms. Maybe that's what it takes to show how debilitating my symptoms are right now because of the treatment.

I mean they ran a battery of tests when I got the PE including full blood work (the hospital originally ordered the wrong genetics test to give you an idea how stupid healthcare is around here), and including a full ultrasound of my leg arteries. Both came back squeaky clean, I should be in perfect health. When I started having the side effects (the nausea) we did even more tests, including another full blood test, and everything came back perfect again. So at this time the medical opinion is 99% sure this is caused by the medication.

Anyway my day started fine though I underslept a little, but at around noon time I got a nausea episode (I call them episodes now to underscore the seriousness). The only reason they're nausea episodes and not vomiting episodes is because I do everything in my physical power not to puke because even though nothing comes out it's like my body is trying to eject my lungs each time. And it's not just a one off, I can do the motions so to speak 3, 4, or even 5 times in a row. Like I've been sick before with stomach bugs and other stuff like that that makes you puke, and it was never as strong as it is with this shit. Sorry for talking about this so grossly lol but tbh after 9 months of feeling like this on the daily I just talk about it openly now.

I turned this into a wall of text again and removed a bunch of stuff lol. One way I thought of explaining it just now is like a stomach flu that will never go away. The triggers are a little bit different but it's otherwise very similar, random vomit attacks throughout the day and very sensitive triggers. And you get a certificate for the stomach flu lol. But the hematologist thinks apparently I can work with this and an employer will happily say "yes we will hire and pay you for 40 hours a week even though you only work 8 because you're always calling in sick" lmao. Like even just the daily commute would be torture for me with this -- I had one half day of work in December and it was impossible. I got an episode soon after arriving and even just typing a checklist on Word was impossible. I had to give the keyboard to my group and let them finish it without me while I was taking everything I had in my power not to start puking everywhere. Oh but the hematologist thinks it's not a "strong enough" reason for a certificate but she also won't give me another solution lmaoooo she can go fuck herself I'm so over this useless dipshit doctor. I'm giving one chance tomorrow to my GP but if I sense she doesn't get it or she's reluctant and I can't convince her, I'm switching. I'm done wasting my time and being nice, I need a fucking treatment plan that works OR they need to accept that I'm disabled and help me get the care I need. If they can't they don't deserve to keep taking my money.

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