4w ago

Disabled Community Megathread from April 14, 2025 to April 30, 2025

Hi everyone! That's right, it's time for another c/disabled megathread.

Update on the meds: they work! Quite well, actually. I feel like I'm finally functioning at a reasonable level, like I was not only getting stuff done, but I'm now able to actually effectively multitask (as much as one can lol). I'm quite happy with how it's working, and I might not even need an SSRI at this point. If I'm getting anxiety from the meds, I'm not feeling it, because they actually reduced the amount of anxiety I have to deal with. I don't know how (thinking ADHD-induced anxiety), but yeah, I'm a lot better than I was just last week. Quite happy for that, might actually be able to manage the end of the semester without crashing and burning this time around.

As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

184 comments

I got around at least one issue today. Since the physio said i can do a little walking I really wanted to get outside. But because of my foot surgery I can't wear anything that puts pressure on the surgical wounds. Last time I was shoeless for nearly 2 months and I don't want to go through that again so i got a pair of scissors and cut the netting of my trainers away, around the areas that are over the surgical sites. I then tried wearing the trainers, and it was fine. I wish i had thought of doing that much sooner, I might not have been shoeless and imprisoned indoors for so long last time.
On the downside even a little walking has made my achilles more painful. The physio said yesterday this achilles problem is most likely caused by the fact that my left side is so weak after the stroke. I've had non-stop issues with my left side since then - torn muscles in my left arm from lifting a small object, endless plantar fasciitis in my left foot, weak left ankle, pain all down left leg and now a swollen inflamed achilles on the left side. Just never ending issues in the left side all because of the stroke.
But weirdly whenever I get a hemiplegic migraine, it's always on the right side. God I hate being trapped in a shitty meatsuit! I want to return to pure spirit.
- Amen, I hate my meat suit too, but I'm glad to hear you found a way to be able to walk outside honey. Take care of yourself, and I hope that being able to slowly go walking again will help with your achilles. The migraines suck, and I hope they won't stay forever.
  
  Thank you. I recently tried a diet that's meant to get rid of migraines, Joel Fuhrman's Eat to Live diet, but so many of the things on that diet actually cause me migraines, I had to stop. Every time I try to help myself, some barrier is put in my way.
  
  Ah, that sucks. Have you by chance figured out a food that helps prevent your migraines? A friend of mine told me they tried certain foods to prevent the migraines. It doesn't always work, but what does with migraines.
  Stay strong, I believe in you
  
  So far potatoes seem to help. Part of me feels like I shouldn't say that in case I jinx myself. I've already jinxed myself telling people my surgical wounds didn't get infected - now they are. Already nuts, beans, fruit and some vegetables are migraine triggers for me. It's frustrating because it cuts out a lot of healthy items. It would be better if processed food caused the migraines, but it's less likely to. I read it's because the proteins in processed food have been denatured, so your body doesn't recognise them as a threat. Whereas the proteins in non-processed food are in their natural form as more likely to be recognised as a threat.
  The human body has evolved so stupidly. Once you develop a health issue, it's likely to cause others and food intolerances to foods that actually might help. It puts you on a downward spiral of worsening health and little opportunity to improve things. Same thing with mental health, it's always a downward spiral.
  
  Very true, unfortunately.
  I hope the potatoes do the trick and make you feel better long-term.
  Didn't know about the processed food thing. It sounds strange at first glance, like, shouldn't the processed stuff be making you feel worse and so on. But those are health issues for you.
  
  Processed food doesn't cause such bad reactions when eaten but causes poor long-term health. Unprocessed food would cause good long-term health but cause unbearable migraines and bladder irritation. The universe just loves fucking with people, I think. I'm going to try the McDougall diet with potatoes and the veggies that don't cause an issue and see how that goes. Lots of people have apparently reversed health conditions with this diet. Also the McDougall diet is cheaper, which may be very relevant as I seem to be struggling with getting responses to my mutual aid posts these days.

184 comments